Is That All That You Were Thinking?

joshuanguyen: Are we really living in 2013? The Lego ads from...

Thu, 16 May 2013 18:16:06 -0400

Are we really living in 2013? The Lego ads from the 1980s seem more modern to me.

Healthy People vs. Chronically Ill People

Sun, 12 May 2013 17:45:46 -0400

Healthy People: I hate my body!
Spoonies: My body hates me!
Healthy People: I hate my job!
Spoonies: I wish I could work!
Healthy People: I stayed out too late; I'm so tired today!
Spoonies: I washed my hair today; I'm too exhausted to do anything else!
Healthy People: Why are you depressed?
Spoonies: There's no "trigger" for depression; it's not just sadness. Depression happens because the chemicals in my head are screwy!
Healthy People: Why don't you ever want to do anything?
Spoonies: You have no idea how much I WANT to do stuff, I just CAN'T sometimes.
Healthy People: I wish I could stay in bed all day!
Spoonies: I wish I could get out of bed today!
Healthy People: Want to go see that new movie at the theater?
Spoonies: *thought process* well, there are 4 stairs to leave the house, 28 steps to the car, the car ride will probably aggravate my headache, more steps and more stairs once we get to the theater, two hours in an uncomfortable chair and $15 to watch a movie I'm probably not going to remember, anxiety from being around so many people, car ride home, getting back into the house...and I have maybe 2 spoons left today. How important is this person to me? Can I push through? Will (s)he mind if we just stay in and catch an older movie on TV?
Healthy People: If you were more active/ate better/lost weight/etc., maybe you would feel better
Spoonies: I'm doing everything within my power to feel better. Sometimes being active is impossible, what I eat is dependent upon what my body can digest, and weight loss is difficult when the first two are beyond my control.
Healthy People: I just read that this new diet/supplement/medication/alternative therapy/yoga pose/etc. can help people with your condition.
Spoonies: If there is something that has shown promise in my medical community, there are people who have tried it. I have likely tried it. I know you just want to help me feel better but you're making it seem as though there's some "magic cure" out there and I'm just not trying hard enough.
Healthy People: What doesn't kill you makes you stronger/God won't give you more than you can handle/Positive thinking/the power of prayer/any other cliche saying
Spoonies: Sometimes, what doesn't kill you makes you beg for death. Also, please don't quote scripture or talk to me about God and prayer if you aren't familiar with my religious beliefs. Not only might that be offensive to me but, also, this has seemed like more than I can handle for way too long.
Healthy People: Check out the new bag I bought!
Spoonies: *thought process* would all my meds fit in that?
Healthy People: How does my butt look in these jeans?
Spoonies: Oh, crap! Did I put on shoes today?
Healthy People: Doctor, what's wrong with me?
Spoonies: When we left last time, we were talking about this symptom I've been having. I did some research, I think it might be...... (and they're usually right!)

static-nonsense: neptunesummer: When you have an illness, sometimes you have to be selfish and...

Sun, 12 May 2013 17:39:36 -0400

static-nonsense:

neptunesummer:

When you have an illness, sometimes you have to be selfish and just focus on yourself. It takes so much energy to try and please everyone else and it’s not worth all the emotional and physical stress. You have to do what’s best for you, even if other people are critical of you or don’t understand. You know your body better than anyone else and you can decide what activities you can and can’t do.

what i needed to hear today

cjshark: bromancenthusiast: brightcopperpenny: andythanfiction...

Wed, 08 May 2013 14:11:43 -0400

She loves twirling in her "pretty dress."

And the next Tiny Princess Avenger is...

Tiny Princess Captain America is a friend to all living creatures!

cjshark:

bromancenthusiast:

brightcopperpenny:

andythanfiction:

jennifermatarese:

the-wordbutler:

sweaterkittensahoy:

brightcopperpenny:

I made my three-year-old niece her first convention/Halloween costume this year. If you ask her who she is dressed as, she’ll reply, “Tiny Princess Captain America!”

On Halloween, we discovered that if you point to a kid in a Captain America costume and ask her who he’s dressed as, she will also reply, “Tiny Princess Captain America!”

Attagirl.

ETA: I just added a post about how to make Tiny Princess Captain America!

From here on out, Steve shall be known as “Tiny Princess Captain America.” If Tiny Princess Captain America says they’re all Tiny Princess Captain America, who am I to argue?

I adore that little tiara.

This is the most adorable thing. Look at her!

This makes me smile so fucking much.

I picture Steve being perfectly okay with it, especially after the day he runs into Tiny Princess Captain America, trick-or-treating in the city along with a bunch of other kids. And she kinda stops in the crowd, and gets this great big smile on her face, and bolts down the sidewalk and up to him, and she just can’t say anything because she’s just in AWE.

So Steve crouches down and says, “You look just like me!”, and she beams even brighter, as if that’s even possible. Then Steve remembers that time Thor told him about how much he loves his little-girl fans, and how when he meets them he lets them “hold” Mjolnir, and also Steve thinks about Thor’s room full of little girl drawings at Stark Tower. (Yes, I *did* just manage to connect this with that Littlest Thor Fangirl post that went around a while ago.) Normally Steven doesn’t get recognized quite like the rest of the Avengers when he’s not in uniform except by elderly folks who remember him from the old days, but since the attack on New York, plenty of younger people and kids spot him on the street out of uniform and know him, just like this little girl.

So Steve asks, “What’s your name?” To which she finally says, “Tiny Princess Captain America!” And he laughs, and then whispers, “I meant your secret identity.” So she tells him, and gives him a big hug, and then runs off to rejoin the other trick-or-treaters.

A week later, she gets a letter in the mail from Stark Tower, and when she opens it she gasps, because it’s a drawing of Captain America and Tiny Princess Captain America fighting bad guys and saving the world together.

I had to.

And now, a response from Tiny Princess Captain America, via her mom:

“She was HILARIOUS when I gave her a printout of the fanart. The first thing she asked was, “What am I doing with my elbow?” Then there were more questions such as, “What are we doing?”, “Are the bad guys sort of like pasta?”, “Is he poking me?”, and “Why isn’t he wearing a dress?” This went on for about half an hour. You know how she is. But she absolutely loved it and it is now standing up on her art easel.

“She decided she wanted to draw a picture for the nice person who drew a picture for her. Tiny Princess Captain America is helping Big Tiny Princess Captain America fight the bad guys all around them. They are both holding their shields and TPCA of course has her signature dress of ruffly tiers. Bonus random balloon, too.

“Next up she decided that she wanted to draw TPCA’s friend Tiny Princess Thor, helping Big Tiny Princess Thor fight the bad guys. This time they have some helpers - butterflies, puppies, and ballet dancers.”

Mariah! It’s our future child!!!

heythereitskatie: For most of my friends, being ill and staying in bed for a day is a big...

Wed, 01 May 2013 08:51:02 -0400

heythereitskatie:

For most of my friends, being ill and staying in bed for a day is a big thing.

For me, going out is a big thing.

The Downfall of Feminism: Disabled People

Mon, 29 Apr 2013 05:24:03 -0400

The Downfall of Feminism: Disabled People:

fibrofrog:

egalitarianbeauty:

This one is going to get a lot of hate. I despise the Americans With disabilities Act (ADA) and not for usual reasons. In the US we have many historical buildings that are being forced to retrofit and honestly ruin their historic nature to install ramps, elevators, etc… Not okay with this. It…

Actually, the guidelines for historical building accessibility in the US were not only created to make historical buildings more accessible for people in wheelchairs, but also to make them more accessible for people that are able to walk and are perfectly healthy. Below is a list of just a few of the guidelines and alterations that must be made to a historical building in the United States in order for it to be accessible to an able bodied person such as yourself

Installing flashing fire alarm lights

Widening doors

Installing offset hinges to widen doorways

Installing accessible door hardware (such as lever handle locks)

Installing pipe insulation under lavatories and sinks to prevent burns

Installing raised toilet seats (note that this is not permitted in Illinois)

Installing full-length bathroom mirrors

Repositioning paper-towel dispensers in a bathroom

Creating designated accessible parking spaces

Installing accessible paper-cup dispensers at an existing drinking fountain

Installing stable, firm, slip-resistant floors

Repositioning shelves

Rearranging tables, chairs, display racks, and other furniture to meet building safety codes

Installing telephones

It seems the issue here isn’t that alterations are being made to historical buildings, but rather your small mindedness.

Sometimes the phrase even if I split your head open you would still be closed minded fits someone perfectly

exquisite-pieces-of-heart: seitanpancake: cathartictumbleweed: ...

Fri, 26 Apr 2013 07:25:39 -0400

exquisite-pieces-of-heart:

seitanpancake:

cathartictumbleweed:

His Bios Urn is a biodegradable urn made from coconut shell, compacted peat and cellulose and inside it contains the seed of a tree. Once your remains have been placed into the urn, it can be planted and then the seed germinates and begins to grow. You even have the choice to pick the type of plant you would like to become, depending on what kind of planting space you prefer.

This is such a beautiful thing to do. MAKE ME A TREE!

When I die I want to be a pretty pretty Tree and help make the world a prettier place!

Scarlet Beads: alittleanonymityplease: The only people who understand how hard it is...

Thu, 25 Apr 2013 03:55:00 -0400

Scarlet Beads: alittleanonymityplease: The only people who understand how hard it is...:

alittleanonymityplease:

The only people who understand how hard it is to be young, and chronically ill, are YOUNG AND CHRONICALLY ILL. Older middle-aged people who become ill, have experienced life. They have experienced their prime. They have had the opportunity to live life. They can look…

chibird: Everybody is different and has something awesome to...

Wed, 24 Apr 2013 15:56:05 -0400

chibird:

Everybody is different and has something awesome to offer the world, including you. :D

lifewithautoimmune: i think i figured out where the hopelessness comes from. when you’re...

Wed, 24 Apr 2013 15:31:38 -0400

lifewithautoimmune:

i think i figured out where the hopelessness comes from.

when you’re chronically ill, life loses it’s possibility. you never wake up and wonder what you could go do, you don’t make plans. you just bear down and merely try to exist through what you have to.

And all the dreams you once had and things you once wanted seem totally pointless and reminders of what you will never have

youlookfinetome: No, you don’t.

Tue, 23 Apr 2013 04:05:41 -0400

youlookfinetome:

No, you don’t.

Sometimes (most of the time….no all of the time) I wish I could just wake up not feeling...

Sun, 21 Apr 2013 06:26:30 -0400

Sometimes (most of the time….no all of the time) I wish I could just wake up not feeling exhausted. Walk without pain and a walking aid. Eat a meal because I actually want food not because I want the pills I get if I have food. Go on a night out for a friends birthday not have the good ones have to arrange there life around me and what I can do and the bad ones just disappear. Yeah that would be nice.

80yearoldteenager: Your boyfriend feels like he is dating an...

Sun, 21 Apr 2013 06:01:19 -0400

80yearoldteenager:

Your boyfriend feels like he is dating an old woman.

Oh how I relate to this one I’m 23 not 93 not that you would guess that most days

Thank you so much for the reply, it's nice to not be alone. Sometimes I forget that in my day to day life and completely feel like I'm the only one. xoxo

Sat, 20 Apr 2013 09:52:54 -0400

I know that feeling it can be really lonely, the internet is a great resource for finding more spoonies and comfort xxx

CHRONIC PAIN BRETHEREN AND SISTEREN AND XEREN

Sat, 20 Apr 2013 05:44:36 -0400

ladyaches:

(x standing for nonbinary folks, like in “xir”)

How do you be an activist with chronic pain and exhaustion? My condition is really touch and go from day to day (like everyone else, I assume), and while I really, really want to get involved with local activism, I’m not sure if I could join an organization that requires a present body at all meetings. I know I can’t do it - that’s why I had to quit a lot of clubs on campus that I loved.

Anyway how do you do activism?

Most organisations are pretty understanding, I’m the events coordinator for my unis womens group and they all understand that I don’t always make meetings or the events! if it’s important we use phones on speaker to get me to take part in a meeting but allowing me to stay comfy in bed if not I get emailed the major points to catch up on when I can there are ways around it all if you are honest from the get go about your limitations

twentysomethingyearsandcounting: right? True love is when oh...

Fri, 19 Apr 2013 18:00:41 -0400

twentysomethingyearsandcounting:

right?

True love is when oh just lets me sleep when I’m having a bad day

victormorenothegreat: totally.

Fri, 19 Apr 2013 17:59:34 -0400

victormorenothegreat:

totally.

Photo

Fri, 19 Apr 2013 17:53:12 -0400

landsofblue: 82/365 I’m both happy and sad at the same time,...

Fri, 19 Apr 2013 17:46:53 -0400

landsofblue:

82/365

I’m both happy and sad at the same time, and i’m still trying to figure out how that can be.

This pretty much sums up my last 8 months. Been diagnosed with fibro. Mysofacial pain syndrome, ddd and having tests for why I’m suddenly having seizures. That’s the sad. But I’ve also met the most amazing guy who is pretty much my rock learnt who my true friends are and how you can always rely on the people that love you and built the most fantastic relationship with my mother. Yeah I’m both happy and sad

We are only human: Comparative Pain Scale

Fri, 19 Apr 2013 14:58:13 -0400

We are only human: Comparative Pain Scale:

whovianherbivore:

0 - No pain. Feeling perfectly normal.

Minor - Does not interfere with most activities. Able to adapt to pain psychologically and with medication or devices such as cushions.

1: Very mild - Very light barely noticeable pain, like a mosquito bite or a poison ivy itch. Most of the time…

Yet again another pain scale where I am clearly a 6-7 on my good days…man I love my life and am really questioning how I think I’m going to be able to get back into full time uni and full time work in a few months