May 2013
6 posts
lolyoureabitch:
HOW AM I SUPPOSED TO MAKE LIFE CHOICES I STILL COUNT USING MY FINGERS
AND I SING THE WHOLE ALPHABET TO SEE WHAT LETTER COMES NEXT
I STILL HOLD UP BOTH HANDS AND MAKE AN L SHAPE TO REMIND MYSELF OF LEFT AND RIGHT
I STILL HAVE TO THINK OF AN ALLIGATOR EATING THE BIGGER NUMBER TO USE THE < AND > SYMBOLS.
Healthy People vs. Chronically Ill People
Healthy People: I hate my body!
Spoonies: My body hates me!
Healthy People: I hate my job!
Spoonies: I wish I could work!
Healthy People: I stayed out too late; I'm so tired today!
Spoonies: I washed my hair today; I'm too exhausted to do anything else!
Healthy People: Why are you depressed?
Spoonies: There's no "trigger" for depression; it's not just sadness. Depression happens because the chemicals in my head are screwy!
Healthy People: Why don't you ever want to do anything?
Spoonies: You have no idea how much I WANT to do stuff, I just CAN'T sometimes.
Healthy People: I wish I could stay in bed all day!
Spoonies: I wish I could get out of bed today!
Healthy People: Want to go see that new movie at the theater?
Spoonies: *thought process* well, there are 4 stairs to leave the house, 28 steps to the car, the car ride will probably aggravate my headache, more steps and more stairs once we get to the theater, two hours in an uncomfortable chair and $15 to watch a movie I'm probably not going to remember, anxiety from being around so many people, car ride home, getting back into the house...and I have maybe 2 spoons left today. How important is this person to me? Can I push through? Will (s)he mind if we just stay in and catch an older movie on TV?
Healthy People: If you were more active/ate better/lost weight/etc., maybe you would feel better
Spoonies: I'm doing everything within my power to feel better. Sometimes being active is impossible, what I eat is dependent upon what my body can digest, and weight loss is difficult when the first two are beyond my control.
Healthy People: I just read that this new diet/supplement/medication/alternative therapy/yoga pose/etc. can help people with your condition.
Spoonies: If there is something that has shown promise in my medical community, there are people who have tried it. I have likely tried it. I know you just want to help me feel better but you're making it seem as though there's some "magic cure" out there and I'm just not trying hard enough.
Healthy People: What doesn't kill you makes you stronger/God won't give you more than you can handle/Positive thinking/the power of prayer/any other cliche saying
Spoonies: Sometimes, what doesn't kill you makes you beg for death. Also, please don't quote scripture or talk to me about God and prayer if you aren't familiar with my religious beliefs. Not only might that be offensive to me but, also, this has seemed like more than I can handle for way too long.
Healthy People: Check out the new bag I bought!
Spoonies: *thought process* would all my meds fit in that?
Healthy People: How does my butt look in these jeans?
Spoonies: Oh, crap! Did I put on shoes today?
Healthy People: Doctor, what's wrong with me?
Spoonies: When we left last time, we were talking about this symptom I've been having. I did some research, I think it might be...... (and they're usually right!)
static-nonsense:
neptunesummer:
When you have an illness, sometimes you have to be selfish and just focus on yourself. It takes so much energy to try and please everyone else and it’s not worth all the emotional and physical stress. You have to do what’s best for you, even if other people are critical of you or don’t understand. You know your body better than anyone else and you can decide...
heythereitskatie:
For most of my friends, being ill and staying in bed for a day is a big thing.
For me, going out is a big thing.
April 2013
19 posts
The Downfall of Feminism: Disabled People →
fibrofrog:
egalitarianbeauty:
This one is going to get a lot of hate. I despise the Americans With disabilities Act (ADA) and not for usual reasons. In the US we have many historical buildings that are being forced to retrofit and honestly ruin their historic nature to install ramps, elevators, etc… Not okay with this. It…
Actually, the guidelines for historical building accessibility in the...
Scarlet Beads: alittleanonymityplease: The only... →
alittleanonymityplease:
The only people who understand how hard it is to be young, and chronically ill, are YOUNG AND CHRONICALLY ILL. Older middle-aged people who become ill, have experienced life. They have experienced their prime. They have had the opportunity to live life. They can look…
lifewithautoimmune:
i think i figured out where the hopelessness comes from.
when you’re chronically ill, life loses it’s possibility. you never wake up and wonder what you could go do, you don’t make plans. you just bear down and merely try to exist through what you have to.
And all the dreams you once had and things you once wanted seem totally pointless and reminders of what you will...
5 tags
Sometimes (most of the time….no all of the time) I wish I could just wake up not feeling exhausted. Walk without pain and a walking aid. Eat a meal because I actually want food not because I want the pills I get if I have food. Go on a night out for a friends birthday not have the good ones have to arrange there life around me and what I can do and the bad ones just disappear. Yeah that...
ifcolorswerenumbers asked: Thank you so much for the reply, it's nice to not be alone. Sometimes I forget that in my day to day life and completely feel like I'm the only one. xoxo
1 tag
CHRONIC PAIN BRETHEREN AND SISTEREN AND XEREN
ladyaches:
(x standing for nonbinary folks, like in “xir”)
How do you be an activist with chronic pain and exhaustion? My condition is really touch and go from day to day (like everyone else, I assume), and while I really, really want to get involved with local activism, I’m not sure if I could join an organization that requires a present body at all meetings. I know I can’t do it - that’s why...
1 tag
We are only human: Comparative Pain Scale →
whovianherbivore:
0 - No pain. Feeling perfectly normal.
Minor - Does not interfere with most activities. Able to adapt to pain psychologically and with medication or devices such as cushions.
1: Very mild - Very light barely noticeable pain, like a mosquito bite or a poison ivy itch. Most of the time…
Yet again another pain scale where I am clearly a 6-7 on my good days…man I...
Reblog this if you are addicted to Biofreeze, ice...
“People who have a chronic illness lose their identity because they can no longer...”
– (via sickgirldiary)
Explains exactly how I feel right now
1 tag
itsonlyafterwevelosteverything asked: Hello there, from looking at your blog, I gathered that you are a fellow spoonie. I hope your day is going well. :)
March 2013
1 post
How rape trials should go?
Lawyer: Did he rape her?
Witness: Yes, but she was drunk and passed out.
Lawyer: That's not what I asked. Did he rape her?
Witness: Yes, but she was wearin-
Lawyer: I didn't ask what she was wearing. Did he rape her?
Witness: Yes, but-
Lawyer: I didn't ask anything else. It's just a simple yes or no answer. Did he rape her?
Witness: Yes.
Laywer: Yes, he raped her.
Rape is rape is rape, no matter the context.
June 2012
1 post
May 2012
14 posts
“You know what I can’t understand? You have all these people telling you all the...”
– David Nicholls (via internal-acceptance-movement)
I need feminism because...
whoneedsfeminism:
When I ask not to be touched in a certain way, because it reminds me of when I was physically assaulted by a patient at a previous job and triggers a fight or flight response, I should not be told I’m ‘overreacting’ and to get over it.
To be honest, this isn’t feminism to a degree, just humans should accept that flashbacks hurt, they are not “overreacting”...
fluffyfemme asked: Hi =) Thanks for the follow =)
Man up....
I’m sure this has been ranted about before but seriously how irritating is the phrase “man up” or even worse “man the fuck up” I am not a man! I do not need to make myself more masculine or stronger or whatever I’m plenty strong as it is thanks. And if the shy boy in the corner doesn’t fancy downing a dirty pint or going after some girl in a club leave...
April 2012
6 posts
deaths-desiderata asked: BEAUTIFUL PERSON AWARD!!! Once you are given this award, you are supposed to paste it in the ask of 8 people who deserve it. If you break the chain nothing will happen, but it’s sweet to know someone thinks you’re beautiful inside and out ♥
tumblrbot asked: ROBOTS OR DINOSAURS?
“I don’t know if rape jokes encourage rape culture. I don’t care. You still...”
– An Addendum, On Rape Jokes. (via goddesshyperion)
March 2012
5 posts
